Tourette Syndrome: a reminder of strengths too
Julia Davies
With "I Swear" recently a BAFTA winner for it's lead actor's portray of John Davidson's lived experience of coprolalia, one of the possible tics of tourette syndrome, it feels adapt to discuss this neurodifference in more detail. Let's leave aside that particular night. I think it highlights that despite all John's work and the film's success there's still a lot to do.
Tourette syndrome
is often misunderstood. Many people’s only reference point is a stereotype from TV or film — usually focused on swearing or disruptive behaviour. In reality, Tourette syndrome is a neurological condition that is far more nuanced, and the people who live with it often show remarkable strengths alongside their challenges.
Tourette syndrome is a condition of the nervous system that usually begins in childhood. It involves tics, which are sudden, repetitive movements or sounds that a person doesn’t fully control. These might include blinking, throat-clearing, facial movements or vocal sounds. Tics can change over time, increase during stress or excitement, and often reduce when someone is relaxed or deeply focused. It affects about 1% of the school age population
and of these only one in ten have coprolalia, in most cases whilst this involves involuntary noices, it does not involve swearing.
What’s important to understand is that Tourette syndrome is not a behavioural issue and not something someone chooses to do. It’s simply the brain working a little differently.
While tics can be challenging, people with Tourette syndrome often develop impressive strengths as a result of navigating the world in their own way.
One commonly reported strength is creativity. Many people with Tourette syndrome think quickly, make unusual connections and bring fresh ideas to problem-solving. This can be a real asset in creative industries, performance, writing, design and innovation-focused roles.
Another strength is resilience. Growing up with a visible condition can require courage, adaptability and a strong sense of self.
Many people with Tourette syndrome develop empathy, persistence and emotional awareness far beyond their years. Handling misunderstandings, curiosity and sometimes stigma takes strength — and that strength often carries into adulthood.
People with Tourette syndrome can also show high levels of energy, enthusiasm and focus,
particularly when they’re engaged in something they enjoy. Many describe entering a state of “flow” where tics reduce and concentration increases. This can make them highly effective in areas they’re passionate
about, whether that’s sport, music, gaming, technology or study.
Importantly, Tourette syndrome often co-exists with conditions such as ADHD, OCD or autism — each of which can also bring valuable traits like attention to detail, hyperfocus or innovative thinking. With the right understanding and support, these differences can become advantages rather than barriers.
Tourette syndrome is not something to be pitied or feared though I recognise it's an incredibly tough condition to live with. It’s one part of a person’s identity — not the whole story. When we move beyond stereotypes and focus on strengths as well as challenges, we create a world where people with Tourette syndrome can be understood, valued and celebrated.
Because behind every tic is a person with talents, humour, insight and a lot to offer. Enjoy this gorgeous film featured in Children in Need about Shay and his lived experience.